Cystic fibrosis (CF) is a complex disease. It requires family support, as well as close monitoring and care from an experienced team of specialists. The Cystic Fibrosis Center at WVU Medicine Children’s provides lifelong CF care following nationally accepted guidelines, and support and resources for you and your family. You want your child to have access to respected specialists and the most advanced treatment options for the best possible health and quality of life. That’s why we established the Cystic Fibrosis Center — to bring outstanding clinical care and groundbreaking research to West Virginia and the surrounding region. Here, your child will have a team of specialists and other health professionals to meet every need — physical, social, psychological, and emotional.
We are West Virginia’s only accredited cystic fibrosis center serving both children and adults, with the largest CF-specialized team in the region. Our outcomes are some of the best in the nation. We’re actively involved in nationwide research and quality improvement efforts. All our team members are specially trained and experienced in treating and managing CF and supporting patients and families. Learn more about our patient outcomes.
Conditions We Treat
Cystic fibrosis is a complex disease that can affect the body in many ways. The Cystic Fibrosis Center treats and manages CF and related conditions and complications. These can include:
- CF-related diabetes
- Depression, anxiety, and other mental health issues that can result from a chronic disease
- Gastrointestinal problems
- Pulmonary infections, including atypical microbacterial infections
Treatments and Services
Here at the Cystic Fibrosis Center, your child is in caring, experienced hands. Our team provides complete, child-friendly care to help your child stay as healthy as possible. We follow nationally accepted guidelines for testing, management, and treatment, and we’re constantly working to improve care and services for patients and families.
We offer a physical therapy program for children and adults with CF. We’ve also added a pharmacy technician to our team, who will assist our CF pharmacist in helping patients manage medications and find the best prices and coverage.
Some of the services we provide include:
- Sweat testing for children and adults — the gold standard in diagnosing CF
- Quarterly pulmonary (lung) function and sputum culture to check for infection
- Treatment and management of all CF-related conditions and complications
- Nutritional counseling
- Help with medication management, insurance authorization, and finances related to CF care and treatment
- Physical therapy for CF patients, including help with manual chest physical therapy
- Psychological screening and treatment for depression, anxiety, and other CF-related mental health conditions
- Local access to groundbreaking clinical trials
Resources
The Cystic Fibrosis Center is more than a clinic. It’s a nationally respected treatment and research center. We’re committed to improving care and life for people with CF and their families.
The mission of the Mountain State Cystic Fibrosis Center PFAC is to improve the quality and experience of care by promoting a patient and family-centered culture in which policies and practices are collaboratively discussed and refined. If you are interested in joining the PFAC please apply here.
- A Teacher’s Guide to CF
- School and CF
- Scholarships 2023
- CF Peer Support
- CFF
- Compass
- Everyday CF
- Psychosocial Support Programs
Cystic Fibrosis Foundation’s Therapeutic Development Network WVU Medicine Children’s is a member of this foundation – the world’s largest CF clinical trials network. Our membership allows us to provide access to groundbreaking national clinical trials.
Success with Therapies Research Consortium (STRC) This group tests promising CF treatments that are most likely to be effective and easily used.
Cystic Fibrosis Learning Network Patients and family members serve on this advisory group which is part of a national program that helps doctors and people living with CF work together to improve healthcare.
We can also link families with resources to help make their lives easier, such as support groups and special services for CF families.
Cystic Fibrosis Foundation The world’s leader in CF research funding provides information and resources for children, adults with CF and their loved ones, and caretakers. Their patient assistive service, Compass, can help with insurance, financial, legal, and other issues.
Contact us
- Pediatric center coordinator: 304-581-1659
- Adult center coordinator: 304-293-9788
- Pediatric and adult sweat testing: 304-293-4011